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apple developer account for sale :Malaysian mum ostracised at work due to psoriasis shares importance of skin disease awareness

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PETALING JAYA — Living with a chronic condition is tough, and even more so when that condition carries the weight of social stigma with it.

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Ms Marsitah Mansor, 36, has been battling psoriasis for nearly nine years and has faced several challenges throughout her journey.

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One of the most difficult hurdles she had to overcome was social stigma in the workplace and her personal life.

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The autoimmune disease, which typically manifests in red and inflamed skin, was so severe that Ms Marsitah had to keep a personal vacuum cleaner by her desk as her skin would flake off as she worked.

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In an interview with Malay Mail, she recalled an incident where she sat down at a meeting table, only to have everyone else sit across from her as they were under the false impression that psoriasis is contagious.

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“There was only me sitting at one side and everyone else sat in front of me.

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“At that time, I was so sad and felt a lot of pain inside. 

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“I was trying my best to explain that psoriasis is not contagious but it was not enough,” said Ms Marsitah.

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The social stigma was so overwhelming that Ms Marsitah switched jobs four years ago because she could no longer bear the way people treated her at work.

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Her self-esteem was also badly affected as the psoriasis drew unwelcome stares and questions from other people.

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“I could feel strangers staring at me and it felt like they were thinking, ‘What happened to this girl?’

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“I also stopped visiting my relatives’ homes because I was very defensive about the way I looked and their perceptions of my disease.

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“My relationship with my husband was also affected as he is a seafarer and is often away from home, but whenever he came back, he saw my condition getting worse and worse.”

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COMING TO TERMS WITH PSORIASIS

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Ms Marsitah said her skin first became inflamed when she was five months into her first pregnancy in 2012.

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It started with a small circle of irritated skin around her belly button which eventually spread to other parts of her body.

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The condition came as a big shock to Ms Marsitah as she had never faced any skin problems in her life up until then.

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She consulted her obstetrician about the problem and was told that the inflammation was caused by a hormonal issue and would clear up once she gave birth.

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“That was the first thought when I started having this disease.

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“I just went with it because I thought that the inflamed skin would go away after my pregnancy.

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“At that time, I didn’t take any medicine or creams to reduce the inflammation,” said Ms Marsitah.

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Her condition gradually deteriorated and she began developing inverse psoriasis, which causes red and inflamed lesions in the body’s skin folds.

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While she couldn’t put a name to the disease at the time, seeing her late father-in-law living with psoriasis helped Ms Marsitah find temporary relief as he offered to lend her his creams to alleviate her condition.

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